Saturday, March 26, 2011

Part 2 GWI and CFS/ME Research Update Conference

Part 2 Continued....
Chronic Fatigue Syndrome
In Chronic Fatigue,there is increased chondroitin sulfate in cartilage and connective tissues. There is also increased Aurora A which can lead to mitosis and malignancies like cancers.
In Gulf War Illness, the network is being pulled in several different directions at one time. Again, Gulf War Illness is not like Chronic Fatigue. It is more connected and it is chronically overactive in the body. All the major systems of the body are on high alert and overreacting. I found this encouraging as it could be the reason why i have fibromyalgia, complex Gulf war illness, hypertension, diabetes, systemic lupus erythmatosis(SLE),chronic diarrhea(Saddam's Revenge),chronic pain,sjogren's syndrome,female disorders and sterility, premature menopause, miscarriage,chronic lymph node involvement, chronic urinary tract infections, shingles,continuous findings of masses and tumors in the breast,kidney,uterus,pancreas,swelling of the spleen, need i go on? I am exhausted just having to write all the illnesses i deal with on a daily basis.
In Gulf War Illness, there is distinct porphyrin (hemes) and ceramide (apoptosis)signaling. All of the body's networks, highways, and biways are more active in Gulf War Illness. Ceramide is THE hub among hubs in the body. There is too much immune B cell activation, angiotensin is up(this could explain the arrythmias, hypotension, hypertension that is active in Gulf War vets and CFS. That alone is why it is important to monitor your blood pressure before, during and after exercise and especially important here in hot South Florida to keep fluids going to keep your blood volume up. The hypothalamus, pituitary gland, the adrenal glands and ATCH are super important in energy regulation in the body. You must really try hard and keep a log book of your sleep, stress, blood pressure, pulse, etc, so you can know the BEST Time for YOU to expend some energy. You must try to figure out the waves of energy and other symptoms you feel to optimize the best treatments,exercise times,etc,. for you and only you.
On a final note, More healthy Desert Storm veterans ,including NonDeployed Gulf War Veterans are needed asap to get in some of the studies so the work can continue to identify possible treatments, therapies, and medicines that might make living a little easier on us. Donations are needed to help continue the work too, whatever one can give. For the couples study, call 305-355-9200. Again that is a study conducted by televideo. You can donate to the Morton fund for Chronic Fatigue at the University of Miami or you can donate to the Southern VA Foundation for Research at the VA. Dr Klimas needs healthy vets and sick vets for studies in her practice at the VA. She also consults with vets by televideo conferences. You can write her a letter at the VA :Dr Nancy Klimas,Veterans Affairs Medical Center,Dept of Medicine (111-1), 1201 Nw 16th st, Miami Fl 33125. You can also send an email to Fanny Collado at In your communication, please indicate if you have CFS or GWI,also if you are a vet or active duty.
P.A.N.D.O.R.A., a 501(3)c charity organization has funded alot of these studies. It was founded by Marly Silverman, a patient herself and a tireless advocate for those sick with CFS,Lyme, Fibromyalgia, and Gulf War Illnesses. They also accept donations and need volunteers to help lobby the government,Congress on May 12,the International Awareness Day for Neuroendocrineimmune Disorders. Please help us on that day to advocate for all of the people affected by these illnesses.
Please join us.

Disclaimer: I am not a medical doctor. I am a very ill sufferer of multiple neuroendocrineimmune chronic illnesses of the past 20 years since Desert Storm. I have done extensive research, read journals, written various doctors by email, etc,. Please view the video of the conference when it is posted on If you have any questions, please send me an email at

I would like to thank all the participants of the studies, Dr.Klimas, Dr Broderick ,Marly Silverman and everyone else who is reading this for your help and support.
I am looking forward with hope and belief that in the next 1 or 2 years, one of these doctors will have some answers and things will turn around. After all,i have a 50th birthday in 2012.
Again, thank you so much for reading this.

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